Making Memories for All: Hosting a Neuro-Affirming Holiday Event The holidays are a time for celebration, connection, and merriment. Whether it be with family, friends, coworkers, or new acquaintances, this time of year is full of interactions. Just as festive gatherings can bring joy and connection, they can also be overwhelming with social expectations, changes […]
Community
From Fellows to DSP: Meet Mariza
Meet the Students Bridging the DSP Employment Gap: Profiles of NEXT for AUTISM FELLOWS Recipients Name: Mariza A. Major: AA Elementary Education Anticipated Graduation Year: 2025 What motivated you to apply for this employment-based scholarship opportunity? The reason why I applied for the employment-based scholarship is my current job. I work one-on-one with individuals who […]
Meet Seth Chea: Building a Bright and Inclusive Future for His Godson
Riseth (Seth) Chea called on his friends, family, and community to support his recent fundraiser to benefit NEXT for AUTISM. The motivation? His godson. NEXT for AUTISM: What inspired you to hold this fundraiser? SETH: I came across a (comedy fundraiser) on YouTube for NEXT for AUTISM. They explained what the organization was all about […]
Autism, Human Connection and the ‘Double Empathy’ Problem
This article by Steve Silberman (1957-2024) was originally published in Scientific American in September 2023. Steve was an award-winning science writer whose articles have appeared in Wired, the New York Times, the New Yorker, the Financial Times, the Boston Globe, the MIT Technology Review, Nature, Salon, Shambhala Sun, and many other publications. His book NeuroTribes: The Legacy of Autism and the Future of Neurodiversity (2015), […]
Building and Supporting Neurological Diversity: What’s Next?
By Cass Cooper, CRN June 10, 2024 When it comes to building and supporting neurological diversity in the IT channel, there are numerous ways to strategize around increasing equity and inclusive leadership. Utilizing metrics, internal polling and organizational focus groups are a wonderful way to start. But what about tangible ways to increase representation within […]
New autistic-friendly business directory aims to encourage acceptance and inclusion
Shared from Yahoo!Life and Megan Gleason, Albuquerque Journal, N.M. May 27, 2024 A new directory highlights local and online businesses with sensory-friendly environments and neurodivergent awareness. It’s a way to help people with autism find everyday businesses where they feel comfortable and accepted. Dr. Rebecca Evanko is the autistic co-founder and executive director of Wilderwood, […]
A celebration 20 years in the making
Sunday, April 2, 2023 It’s World Autism Awareness Day and the beginning of #AutismAcceptanceMonth. This year, the team at NEXT for AUTISM is celebrating our 20th anniversary. We are reflecting on 20 years of listening, innovating, empowering, and sharing. Driven by our deep belief that individuals with autism deserve to live fulfilling and productive lives, NEXT has two decades […]
2023 Color the Spectrum Community Grants Cycle is Now Open
NEXT for AUTISM Now Accepting 2023 Color the Spectrum Community Grants Applications The NEXT for AUTISM 2023 Color the Spectrum (CTS) Community Grants Applications cycle is officially open for submissions, as of today, March 6, 2023. This will championing autistic led or centered initiatives only. Eligibility for the 2023 CTS grants cycle is based on […]
NEXT for AUTISM Announces 2022 Community Grant Recipients
NEXT for AUTISM, the leading nonprofit dedicated to transforming the national landscape of services for people with autism by strategically designing, launching, and supporting innovative initiatives, announces more than $1.3 million awarded to 42 organizations in 20 states. 16 grant awards went to autistic led or centered initiatives. The 2022 Color The Spectrum Community grants […]
Meet Lindsay Valenti: Running Toward an Inclusive Future for Her Son
On February 12, 2023 Lindsay Valenti will take on a marathon endeavor, running the Publix Florida Marathon. In addition to the hours of training and marathon prep, she is fundraising to support NEXT for AUTISM as part of her journey. Lindsay is motivated to run the marathon to benefit NEXT for AUTISM, to support her […]
“Myth-busting” The Role of the Direct Support Professional: Professionalizing the DSP
By Brad Walker, Vice-President, Strategic Adult Initiative at NEXT for AUTISM and Shelly May, Deputy Director, Johnson County Developmental Supports/Board President – InterHab Autistic and intellectually developmentally disabled (IDD) adults desperately need quality community-based professional support. Close to 200,000 autistic individuals are waiting for access to a safe home and professionally developed DSPs, where they […]
Autistic Adults, Increasing Professional Understanding: An Interview with Dr. Peter Gerhardt, by Patricia Wright, PhD, MPH, NEXT for AUTISM’s Senior Vice President, Strategic Initiatives
Dr. Peter Gerhardt, a champion of the need for effective services for autistic adults for decades, participated in an interview for this month’s Connecting the Dots blog, a blog hosted by ABAI with a goal to disseminate behavioral science to a broader audience. Dr. Gerhardt is also a member of NEXT for AUTISM’s Advisory Board. […]
Direct Support Professionals Recognition Week 2021, by Brad Walker, VP, Strategic Adult Initiatives, NEXT for AUTISM
Brad Walker, VP, Strategic Adult Initiatives, NEXT for AUTISM More than 4.5 million people have chosen to work professionally in the role of a direct support professional (DSP). DSPs are the individuals providing daily support to 1.4 million people with intellectual developmental disabilities and autism across the country (Report to the President, 2017). The DSP […]
Women and Autism: Facts and Figures
March is Women’s History Month, and to celebrate and acknowledge the women in our community, we have been sharing facts about women and autism throughout the month. Did you know? Autism is 4 times more common in boys than girls, and women are diagnosed with autism later in life and less frequently than men. There […]
What’s next for NEXT for AUTISM?
Did you know there are 5.4 million adults living with autism in the United States? While the Center for Disease Control (CDC) has been collecting data and releasing information about the prevalence of autism in children for decades, 2020 marks the first time the CDC has reported on adults. If the past is prelude, availability […]
What About the New Data on Adults with ASD?
What About the New Data on Adults with ASD? By Patricia Wright, PhD, MPH In May, the Centers for Disease Control and Prevention (CDC) published its first study on the prevalence of autism in adults, which estimated that 5.4 million adults in the U.S. are living with autism. Although an estimate, this number is the […]
My Vision for the Future
By Lauren Steinbacher, Director, Corporate Employment, NEXT for AUTISM The business world has undergone dramatic shifts due to the COVID- 19 pandemic. Companies have contracted or shut down, some for good. Thirty-three million people filed for unemployment in the first seven weeks of this crisis. By most indicators, the world economy is experiencing extensive retrenchment. […]
What is it like NOT to be yourself?
By Patricia Wright, MPH, Senior VP Program Development, NEXT for AUTISM COVID-19 social distancing has caused all of us to redefine what it means to be social and it has not been comfortable. An act as natural as socializing is now weighted with complex calculations. We now have to navigate social rules that feel unfamiliar […]
Natural Supports in the Workplace
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The Gen-Z Autism Talent Pool
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Workplace Accommodations for Employees with Disabilities
In our work with companies to create sustainable and scalable talent acquisition programs for individuals with disabilities, we field questions about accommodations that expose a persistent lack of clarity. Here is a quick FAQ to help answer some of those questions. How do I know when to provide an accommodation? The employee will request an […]
Supporting Adults in Medical Situations
SUPPORTING ADULTS IN MEDICAL SITUATIONS By Brad Walker, V.P., Community Living Supports Families with adult children on the spectrum face an additional layer of concern during the COVID-19 crisis. How should they prepare for medical emergencies for their adult children, many of whom may not be able to effectively advocate for themselves? What supports can […]
COVID-19 Isolation with the Carleys: How a Dad on the Spectrum Copes
By Michael John Carley, Autism Self-Advocate & NEXT for AUTISM Board Member There was tempered joy upon seeing my 23-year-old, who is also on the spectrum, exit the station. On one hand, C.C. was with us, his family, to ride out the coronavirus in less-impacted Wisconsin, joining Kathryn, myself, and his 14-year old brother. We […]
How To Attend Online Meetings
By: John Bryson, MS Ed, CESP | Senior Manager, Corporate Consulting BEFORE THE MEETING Prepare Environment Choose a quiet place with good lighting for your online meeting. Do not sit with your back to a window, and make sure there is light on your face. If possible, avoid places with background noises such as TVs […]
Grantee Spotlight: Up and Away Immersive Musical Now Online!
In 2018, Lincoln Center for the Performing Arts in New York City created an innovative musical, designed just for children with autism and their families. Up and Away was a sold-out event in which each child became part of the story and journeyed through the set with actors trained on the sensitivities and challenges of […]
A Letter From Ilene Lainer – April 2, 2020
As I write this letter, the global health crisis has firmly taken hold in New York City, NEXT for AUTISM’s home. I’m relieved to report that our staff is doing well, having adjusted to working remotely with agility and speed. NEXT for AUTISM is fully operational online. Consistent with our mission, we are planning for […]
How To Structure Your Day
Working from home presents challenges that can be overcome with structure and scheduling. NEXT for AUTISM, using evidence-based practice, suggests the following tips for all employees, especially those with autism. Establish a Routine Start and stop at the same time every day Dress according to your company’s dress code Set up a regular work area […]
Adjusting to the New Normal
ADJUSTING TO THE NEW NORMAL Like everyone else, the team at Project SEARCH Autism Enhancement (PSAE) had to respond rapidly to the forced shut down due to the COVID-19 crisis – and they did, achieving a smooth transfer to remote learning for each intern and resuming the program’s regular schedule, five days a week. While […]
Tips for Supporting Employees with Autism & Other Disabilities During Stressful Times
For employees who are neurodiverse, the current state of uncertainty can be amplified by their social and communication challenges. NEXT for AUTISM offers these strategies to managers and colleagues, as well as the general public, who can play a role in helping people with special needs during this time. How to Communicate With Your Employee […]
Staying Positive: Some Helpful Tips
By Patricia Wright, Ph.D. MPH Patricia Wright, Senior VP of Program Development, offers her thoughts on how parents might mitigate anxiety for themselves and their children with autism during tough times. This is a fluid situation. Stay informed but try not to check your newsfeed constantly. This will contribute to your anxiety, which will be […]
“There’s No Place Like Home”
Courtesy of The Arc By Brad Walker, V.P., Community Living Supports A recent, national report by The Arc confirmed that people with intellectual and developmental disabilities, including those with autism, prefer to live in community-based settings. Community living, according to the report, is not only more cost effective, it also leads to positive outcomes in […]
The AAP’s Latest Recommendations on ASD: Our Takeaways
By Patricia Wright, Ph.D., MPH, and SVP Program Development The American Academy of Pediatrics (AAP) recently issued an updated clinical report on autism, its first in twelve years. The recommendations in “Identification, Evaluation and Management of Children with Autism Spectrum Disorders” were notable for promoting early diagnosis and intervention and greater attention to adolescence and […]
20/20 Vision in 2020- A Letter from Ilene Lainer
As we enter a new decade, I’ve been thinking back on our work over the last ten years. Each of the programs that we built began with one common drive – to think forward and envision new possibilities for individuals and families living with autism. I look forward to the next decade, and am committed […]
Making a Difference is the First Step
Brad Walker, VP of Community Living Supports, trains and consults with staff at NEXT for NEIGHBORS, our community living program currently in development. The program will employ the Professional Family Teaching Model, which emphasizes family-style living in a supportive, teaching environment for adults with autism. To honor National Caregivers Month, Brad celebrates two, exemplary professional […]
The Case for Meaningful Work
https://nextforautism.org/wp-content/uploads/2019/10/Copy-of-The-Case-for-Meaningful-Work-600×428.png by John Bryson, M.S.E, Sr. Manager, Corporate Employment Consulting, NEXT for AUTISM I’m often asked why I work in disability employment helping young people with autism and other disabilities prepare for and find meaningful work. My answer is always the same. I’m motivated by a case that lit a fire in me. Its senselessness […]
The Women of PSAE Get to Work!
https://nextforautism.org/wp-content/uploads/2019/09/Screen-Shot-2019-09-03-at-4.49.42-PM-600×399.png By: Alison Bush, M.S., BCBA Meet Shannon. She’s one of two women who graduated in 2019 from our Project SEARCH Autism Enhancement internship and employment program or PSAE. Shannon was driven to land a meaningful job after the hard work that she’d put into the training program, and she did. She’s thrilled to be […]
Embracing the Amazing
On a recent afternoon, representatives from Queens Public School 219 brightened our day with an uplifting story about their school’s campaign to celebrate diverse abilities, “Embracing the Amazing.” The K-8 school in Flushing, Queens enrolls 700 students, twenty-seven percent of whom are on the autism spectrum. During the month-long celebration, children in the lower school […]
What’s New With Our Favorite Dads?
https://nextforautism.org/wp-content/uploads/2019/06/ed-kevin-leo-2-600×358.jpg Three years ago on Father’s Day, we introduced our readers to Ed Tournu and Kevin Donohue, two Long Island dads who had adopted a boy with autism. Though they had only intended to foster 13 year-old Leo at the time, until a permanent home could be found, the dads fell in love with Leo […]
Autism Interns Gain Real World Experience While Raising Awareness
On a recent spring day, Shannon and Jack, two interns from the Project SEARCH Autism Enhancement employment training program, were spotted at an information table, greeting passersby on NewYork-Presbyterian Hospital’s Westchester campus. They wanted to raise awareness about their program and the importance of work for people with autism. With the high rate of unemployment […]
A Happy Mother-Daughter Partnership
Mothers and daughters have connected over food for generations, but that wasn’t the reason that Arlene Maidman took her daughter, Julia, to cooking lessons four years ago. Family friends had gifted the lessons to Julia for her sweet 16, and Arlene just went along. But what she saw in Julia that afternoon changed both of […]
The Light In All Of Us
https://nextforautism.org/wp-content/uploads/2019/04/Satya-and-Son-e1556742652157.jpg Satya, jewelry designer and the owner of Satya Jewelry, approached NEXT for AUTISM to partner on the launch of The Beautiful You Collection, which she had designed to honor the individuality and gifts of those on the autism spectrum. Satya is committed to celebrating our community and has pledged to donate a portion of […]
Open Yourself to a World of Possibility
https://nextforautism.org/wp-content/uploads/2019/04/Pic1.jpg This remarkable 16-year-old high-school student, Shreya Suneja, became involved with autism causes when her younger cousin was diagnosed. She shares her story with us, hoping to inspire other young people towards greater acceptance of individuals with autism. Walking through the hallways of my high school, one thing has become very clear to me: we […]
Thinking Forward – April 2, 2019
We entered 2019 redoubling our efforts not only to build excellent model programs for people with autism and their families, but also to better define ourselves as an organization. I’d like to share some of our evolving insights with you, as they are our guide to moving forward. We Reimagine Autism Services. NEXT for AUTISM […]
The Coming Care Crisis as Kids With Autism Grow Up
The personal challenges and systemic barriers faced by adults with autism and their families are, indeed, as profound as outlined in The Atlantic article below. Life for adults with autism can be devoid of opportunity and hope. For parents, navigating a confusing system of support and facing an uncertain future are sources of unrelenting anguish, […]
A Message from Ilene Lainer – December 2018
2018 was a year of strategic planning as well as empowerment at NEXT for AUTISM. Our leadership looked back at 15 years of program building and planned forward. The process challenged us and affirmed our commitment to always ask, “What’s NEXT for autism?” This year, we focused our energies on creating opportunities for adults, the […]
2018 A Year of Empowerment
We empowered people with autism to thrive at work, at home, and in our communities with new programs and services. READ OUR ANNUAL REVIEW HERE
Video: What’s Next for Autism?
What’s Next for Autism? Meet Tamar, a recent graduate of our employment training program, as she embarks on a hopeful start at her first job. Laura Slatkin and Ilene Lainer provide impassioned interviews on NEXT for AUTISM’s vision for programs that support young adults like Tamar. Dr. Jeremy Veenstra-Vanderweele of the Center for Autism and […]
Good Work That’s Good For Business
Good Work That’s Good For Business Photo courtesy of CINTAS Corporation In honor of National Disability Employment Awareness Month this October 2018, we offer this story about the progress corporations are making to diversify the workforce and include people with autism and other developmental disabilities. With the expertise of disability consultants at ADVICE, and support […]
PS-AE: 9 Interns, 9 Graduates, 9 Jobs
Project SEARCH Autism Enhancement Graduation 2018! As the 2019 class of employment training interns begins this fall at Project SEARCH Autism Enhancement, we thought everyone would enjoy this video of the previous year’s graduation. Note the pride as these graduates share their accomplishments. We, too, are proud. 9 Interns, 9 Graduates, 9 Jobs. Here’s to […]
CADB Turns 5! Looking Back, Planning Forward
It’s hard to believe that it has been five years since the launch of Center for Autism and the Developing Brain, a comprehensive diagnostic, treatment and research clinic for individuals with autism of all ages and their families. CADB, as we call it, was created by NEXT for AUTISM in partnership with NewYork-Presbyterian Hospital and […]
Happy Grads Celebrate Dads
June is the month to celebrate graduates and honor fathers. This month, NEXT for AUTISM is celebrating a group of bright, young adults who are graduating from our Project SEARCH Autism Enhancement employment training program at NY-Presbyterian Hospital in White Plains. After ten months of job skills training and internships, our graduates are setting off […]
“I Want to Keep You Every Day”
Launching a child into adulthood is, by all standards of motherhood, an endeavor of balance. It requires both faith in your child’s ability to be independent and confidence that she will circle back to you for support and love. For a mother of a child with autism, gaining interdependence with your child can be elusive, […]
Working Toward Adulthood
As Autism Awareness Month draws to a close, we at NEXT for AUTISM would like to highlight a key focus of our work – advancing the future for adults with autism by creating more opportunities for them. Our work addresses every life stage of individuals with autism and their families, so designing and building model […]
An Employer’s Perspective
Guest Blog Post by Keedra Cotton, Pre-Analytical Supervisor at Quest Diagnostics in Tucker, GA. What I Learned From Managing People With Autism Spectrum Disorder Jordan dreamed of finding a career that would allow her to excel using her skills and talents. Though her dream is one that she shares with many, Jordan is a person […]
A Message from Ilene Lainer
When the United Nations declared the first World Autism Awareness Day on April 2nd, 2007, NEXT for AUTISM was already four years old. We had opened the NYC Autism Charter School, our first model program, and we were actively tackling the lack of quality services for individuals with autism and their families. We were then, and […]
The NEXTGen Board Visits the BOOST! After School Program
In an effort to gain a deeper understanding of NYCA’s work, our NEXT Gen board of directors recently spent time with children and teen mentors at the Jewish Community Center Manhattan’s BOOST! After School Program, one of NYCA’s first and banner initiatives. Ilene Lainer, NYCA’s President, and Allison Kleinman, Director of the Jack and Shirley Silver […]
Happy New Year from NYCA’s Next Gen Board!
2017 is shaping up to be an exciting year for us on the new, Next Gen board. We formed early last year and by summer, had gotten to know each other and gain a greater understanding of the excellent work that NYCA does. Each of us has been impacted by autism, either directly through siblings […]
Celebrating Community Connections
Only a few weeks left in April! NYCA is celebrating people on the autism spectrum and the communities that embrace them. Join us by sharing our posts and your own stories using #NYCACommunityConnections
Celebrating Community Connections
NYCA is celebrating individuals on the autism spectrum and the communities that embrace them. What activities do you enjoy doing with your friend, family or community member on the autism spectrum? Comment and use hastag #NYCACommunityConnections
Celebrating Community Connections
It’s officially Autism Awareness month! Throughout April, NYCA is celebrating people on the autism spectrum and the communities that embrace them. Stay tuned to our social media and help us spread the word using hashtag #NYCACommunityConnections Facebook Twitter LinkedIn
A Spectrum of Love
A Spectrum of Love Romantic love, a yearning made urgent by Cupid’s visit this month, is a subject with which many in our community are preoccupied. They wonder if and how they will find love, and when they do, how they might navigate its occasionally tricky waters. We spoke to Dr. Catherine Lord, Director of […]
The 2nd Annual Cabaret to Benefit Autism, “All You Need: A Beatles Cabaret”
On July 30th, over 300 community members, performers and volunteers attended the second annual Cabaret to Benefit Autism held in Woodmere, NY to support NYCA. At this year’s event, “All You Need: A Beatles Cabaret,” 13-year old Andrew Feldman (producer, director, drummer, vocalist) and friends performed over 30 iconic Beatles songs from “All You Need […]
NYCA Donor Spotlight: From a Night in Paris to a Broadway Style Cabaret!
Meet Annie, a 13-year-old on a mission to make a difference in the lives of people living with autism. Annie organized a Paris-themed Bat Mitzvah in March 2014 where she raised money from friends and family to support NYCA. Annie’s celebration included Eiffel Tower-themed décor, endless French cuisine and even an appearance from Mr. Met! […]
JCC & BOOST! Press Release
THE JCC IN MANHATTAN AND NEW YORK COLLABORATES FOR AUTISM CELEBRATE TEN YEARS OF INNOVATION Longstanding Partnership Has Generated New Opportunities for People on the Autism Spectrum NEW YORK, NY, July 16, 2013 — Over the past decade, the Jewish Community Center in Manhattan (JCC) has become a mission leader in the development of inclusion-oriented programs […]
The Center for Autism and the Developing Brain Opens
10 Years, 10 Triumphs: Triumph 3 CADB Opens On Monday, our dream became a reality, the Center for Autism and the Developing Brain officially opened its doors to a new way of caring for people with autism. The state-of-the-art facility, which is located on New York-Presbyterian’s 214 acre Westchester Campus, serves children, adults and families dealing with […]
Katy Perry and Jodi DiPiazza Moves Millions to Tears
10 YEARS, 10 TRIUMPHS: TRIUMPH 1 Over 6 Million Watched Jodi DiPiazza & Katy Perry This year NYCA is celebrating its 10 year anniversary by sharing our 10 triumphs in autism. In reflecting on the last 10 years, a very special moment stands out – the unforgettable duet of Jodi DiPiazza and Katy Perry at Comedy […]
